My Journey

I'm not Handicapped, I'm Handicapable.
(and no i didnt get that from due date lol)

I left home and drove from nj to california in search of an independent life and safe access to my medicine* so i can live. It's been an interesting journey, lots of ups, lots of downs, and even though I am now weaker than ever...nothing will ever stop me from living my dream, regardless of how long I get to live.

Life is too precious and short to waste time. And I'm Ready.

The three videos below are before and after i left nj, an interview with the Washington Post during my road trip, some audition, and one other one hahaha idk i didnt set up the web site, im kinda lost there :P below that are blog entries! thank you!

Feel free to contact me at all times:

Help to save Mikey's life

As you know, Mikey has always been able to smile through the pain, no matter what, until recently. The pain in his stomach is now worse than ever and has led to an inability to eat, causing rapid weight loss. At 6'1", he's a meager 75 lbs and dropping fast. It's getting more difficult for Mikey to smile through the pain and fear.

One of the only places where Mikey can get help is the MAYO clinic in Minnesota. There, a team of specialized doctors will work together to figure out how his illnesses affect each other and can be treated to restore health and balance to his body so he can keep living his incredible life.

All of this obviously comes with a large amount of costs, which can only be covered with the help and donations of as many people as possible – even if it's just a dollar. Please click on one of the two following links to access the crowd funding campaigns that will help Mikey get better. Thank you!


My caretaker Ben

This is the person who allows me to live;
For those who don't know what it is to be disabled or a caretaker, it can be a tad difficult at time, for both parties :) This man, Ben Boquist, has been my caretaker for over 8 months, helping me with showers, bathroom at times, changing me, carrying me, feeding me, helping me medicate, pick up food and medicine, carry my up stairs at a Deftones concert so I can hang out with my friend Abe the drummer, and he just got me a baby Christmas tree....Everything and more. He has become a best friend to me. Ben isn't a "qualified" caretaker, he isn't a nurse haha but he is better then any qualified one could be, but I want to say thank you publicly to him, and introduce you to the man that enabled me to do everything in the last 8 months. Ben has to stop working next week. He is looking for full time work that pays more (I don't blame him!), and I wish him luck! As sad as I am to see him go, and as I now face having to find help all over again haha not the first time tho :) Im lucky I had his help for as long as I did. Thank you Ben, you are irreplaceable. Much love brother, thank you for allowing me to live such a beautiful life :)

Cheeks and Paul Vilas Jones.


My twitter