My Journey

I'm not Handicapped, I'm Handicapable.
(and no i didnt get that from due date lol)

I left home and drove from nj to california in search of an independent life and safe access to my medicine* so i can live. It's been an interesting journey, lots of ups, lots of downs, and even though I am now weaker than ever...nothing will ever stop me from living my dream, regardless of how long I get to live.

Life is too precious and short to waste time. And I'm Ready.

The three videos below are before and after i left nj, an interview with the Washington Post during my road trip, some audition, and one other one hahaha idk i didnt set up the web site, im kinda lost there :P below that are blog entries! thank you!

Feel free to contact me at all times:

Help to save Mikey's life

As you know, Mikey has always been able to smile through the pain, no matter what, until recently. The pain in his stomach is now worse than ever and has led to an inability to eat, causing rapid weight loss. At 6'1", he's a meager 75 lbs and dropping fast. It's getting more difficult for Mikey to smile through the pain and fear.

One of the only places where Mikey can get help is the MAYO clinic in Minnesota. There, a team of specialized doctors will work together to figure out how his illnesses affect each other and can be treated to restore health and balance to his body so he can keep living his incredible life.

All of this obviously comes with a large amount of costs, which can only be covered with the help and donations of as many people as possible – even if it's just a dollar. Please click on one of the two following links to access the crowd funding campaigns that will help Mikey get better. Thank you!


I love my disease


Anonymous at: December 1, 2012 at 12:42 AM said...

Why do you choose too assume life with a "normal" body would be less fulfilling then what you have now? You say you would be going to frat parties and be a jerk? Really? Maybe, but you have no way of knowing that. I can see how you would say it to help you cope with where you are now, but you don't know. Illusion, denial, false equivalents are only coping mechanisms. Nothing wrong with that but you only fool yourself. I don't know you. But I also have SMA. I am 53, I've lived on my own from 18 years old. Left CT. moved to L. A. for school and warm weather like you. Earned an MFA. Lived a life had relationships, good times and bad. I need help from IHSS in my later years. That's it. I never felt I had to prove my self worth. When I watch your videos I wonder why you go to such lengths to prove your self worth. You are who you are. I realize we live in a culture of "reality TV" where we laugh at the folly of others. I'm not a fan of this and it makes me wonder why people do it. It's painful to watch your videos and yet in some way I understand. It's not my way. I learned it's not always about me. I wish you luck. But if I hear one more time how "inspirational" disabled people are. . . People need to raise their expectations a bit. Sheesh. Gary

My twitter