My Journey

I'm not Handicapped, I'm Handicapable.
(and no i didnt get that from due date lol)

I left home and drove from nj to california in search of an independent life and safe access to my medicine* so i can live. It's been an interesting journey, lots of ups, lots of downs, and even though I am now weaker than ever...nothing will ever stop me from living my dream, regardless of how long I get to live.

Life is too precious and short to waste time. And I'm Ready.

The three videos below are before and after i left nj, an interview with the Washington Post during my road trip, some audition, and one other one hahaha idk i didnt set up the web site, im kinda lost there :P below that are blog entries! thank you!

Feel free to contact me at all times: mike@mikeywheels.com


Help to save Mikey's life

As you know, Mikey has always been able to smile through the pain, no matter what, until recently. The pain in his stomach is now worse than ever and has led to an inability to eat, causing rapid weight loss. At 6'1", he's a meager 75 lbs and dropping fast. It's getting more difficult for Mikey to smile through the pain and fear.

One of the only places where Mikey can get help is the MAYO clinic in Minnesota. There, a team of specialized doctors will work together to figure out how his illnesses affect each other and can be treated to restore health and balance to his body so he can keep living his incredible life.

All of this obviously comes with a large amount of costs, which can only be covered with the help and donations of as many people as possible – even if it's just a dollar. Please click on one of the two following links to access the crowd funding campaigns that will help Mikey get better. Thank you!











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Today

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Feels like I hit the reset button :) air is clear :)

True colors

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Life gets so much clearer when u can see people's true colors

My caretaker Ben

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This is the person who allows me to live;
For those who don't know what it is to be disabled or a caretaker, it can be a tad difficult at time, for both parties :) This man, Ben Boquist, has been my caretaker for over 8 months, helping me with showers, bathroom at times, changing me, carrying me, feeding me, helping me medicate, pick up food and medicine, carry my up stairs at a Deftones concert so I can hang out with my friend Abe the drummer, and he just got me a baby Christmas tree....Everything and more. He has become a best friend to me. Ben isn't a "qualified" caretaker, he isn't a nurse haha but he is better then any qualified one could be, but I want to say thank you publicly to him, and introduce you to the man that enabled me to do everything in the last 8 months. Ben has to stop working next week. He is looking for full time work that pays more (I don't blame him!), and I wish him luck! As sad as I am to see him go, and as I now face having to find help all over again haha not the first time tho :) Im lucky I had his help for as long as I did. Thank you Ben, you are irreplaceable. Much love brother, thank you for allowing me to live such a beautiful life :)










Cheeks and Paul Vilas Jones.

School shootings

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My heart goes to the families of the students, it really does. There are tragedies every day all around the world. Millions of innocent people are killed all the time worldwide. Instead of just stewing in it, lets be thankful for the life we have today and not talk about it for eternity. Its literally all I saw when I logged into Facebook. If all we focused on was the bad news, where do we leave room to see the OTHER side of life? It's good and bad, beautiful and ugly, and everything although we may not like it happens for a reason, maybe awareness. Maybe it's just the way of the universe. Be thankful today and every day, think about what you have compared to others, life... it may be your last, trust me i know :) yesterday I saw inspiration and photos and beautiful things on here for the brief time I was on. Lets get back to that and be thankful for what IS. There is too much negativity in this world to focus on. We need to work on being peaceful with each other, this is yet another wake up call. I hope one day, hopefully as my friend Adam said, we wish these words don't have to be said regarding the shooting, that there wasn't this sad news. But we must live in the present. And be thankful for that breath that we take, and the senses we feel. Lets be grateful for this beautiful thing called life. Remember the bad, but focus on the beauty that is everyone and everything. Lets not let a few sick people overtake our minds. One love.

A tweet from today

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@Very_Accessible: Im hoping 2013 is a much more peaceful year. Less, if not no war, no more global hunger, end the oil race, and overall, world unity.

Paris Hilton and everyone's donations backfire

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So I recently just found out that I'm not allowed to receive donations, at all.... no birthday money... a buck on the floor, pretty much anything. They expect me to survive off 1/5 of what I need for my disability. On top of that, somebody in my life who has grievances with me... Which I won't get into, has reported me to social security, especially talking about Paris Hilton's @parishilton $5000 donation to me... Being the largest ever in my life and there is Proof. Also he told about everyone else's donations too. Again, not going to get into the details, it would truly disgust people.

By the way, on the subject of Paris, people criticized the size of the donation, or that she "shoulda given me more regularly" I just wanna point out that she didnt have to give me ANYTHING, she found my blog like others and felt like helping me out of the kindness of her own heart... Now lemme tell you, for a guy like me...$5000... That's a lot. Plus it was more then anyone who was complaining about was giving me....

PLUS - I think it's absolutely ridiculous that Kim Kartrashian, a millionaire... donates Kanye whack West a half million dollar Lamborghini....that money could have fed hundreds of thousands of people around the world. That kind of money can save lives....never mind me... There are others who need it more then me...

What did Kanye do? Besides rip off other artists....and act like an idiot with his ego, He has millions to buy his own lambo plus ten. He is famous, and so is she. So I guess the rules are thrown out... But when Paris Hilton helps a Joe Shmoe from NJ... People have such negative things to say about it?! She created something, 17 products and companies, she doesn't just sit there waiting for an inheritance..like others.

I love you Paris, ur an angel. I can't thank you enough for what you did. You saved my skinny ass! Ur a true sweetheart. With a heart of gold xoxo

I don't get some celebrities. Paris wasn't donating as Paris Hilton the woman who has accomplished so much and has a powerful last name she was born into, she was donating as a friend. Not like Kim, who did it as a publicity stunt. Even when her butt is the only reason people watch her and she is famous... Her butt..which..really.. (ain't all that). Sorry haha

So the very donations that have allowed me to survive for 4 years, are the very donations that may get me in trouble. They will ask me to probably pay it back. I will fight it.

Am I mad? No. Will I ever stop needing donations, not until I have a Job that supports me and my medical needs!! Which a friend Dann has just presented me with an opportunity to do some writing work :) it's a start!!!!!

I will continue to fight, no matter how little or much money I have. My favorite year in life was my first here in Cali 2008, and I was beyond poor and starving. It was the pure joy of peace, and self fulfillment.

People like my family, friends like Lutz H, Dean May @deanmay, Paris, @parishilton, Pablo @pablogm88, Hamza, Zamir, friends from the east coast, followers from Facebook and twitter and YouTube, randomly have graciously given me money over time to make sure that I always have something. Believe me, there have been times where I'm down to a last dollar. Meds cost me $2000 a month, and proper caretaking if proper... can get into the thousands. I need 24 hour help. The government only helps with a few hours a day in reality. These days I'm much weaker then I was a month ago. Pretty much they don't provide enough for a sick person to actually stay alive, sick.

WITHOUT YOU I WOULD BE DEAD!

Now I never wanted to live based off donations, I don't like needing help to live, I want to be able to make money, just like living disabled, I wanna work disabled. I want to be like everybody else.

I still want to be the first disabled man in space too :) with Richard Branson, on Virgin Intergalactic. I have to do anything I can do get there, and i will :) That dream has been there for my whole life!!

I have 12 terabytes of footage I have been going through, and have been getting back into the swing of editing videos for the people who watch. I'm just fighting the cold and sickness with very little help (due to finances), but I feel with this new year.. It's gonna be beautiful and profitable and helpful for myself and others :) videos are coming of my crazy life :)

I want to thank EVERYONE who donated and who may donate to me...thank you. You all don't know how much u all saved my skinny butt!!! 80 lbs and 6'2" has to change!!! :X :D

Just because the government wants us dead doesnt mean I'm going quietly. One less disabled person, one less SSI check to write, and politicians get that much richer.


I'm not letting the Gov scare me. That's my life money!!!

Fight to the end. I think that's my MO. I don't quit, I don't slow down, I dream bigger then you, and I'm probably a little crazy :) but look back in history... Everyone we admire now, was once called crazy :)
....I DONT wanna be admired, or complimented, I just wanna realize the dreams I have in my head. It's a solo life mission that I'm honored other people are a part of :) no ego here, I'm just a dream believer :)

Love you so much!
Happy 12-12-12 :)

Love Mikey

Brittany

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Such an angel, thank you so much.

Selfless acts to help keep me alive

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Aimee, who is a absolute sweetheart, saw that I was in need of money for care taking and food and life! She didn't just donate like the incredible people that do normally... She created a fund raiser on indiegogo to try and raise $1000 for me for medicine and food ect. Although the goal was not reached, STILL, $80 was raised! Which to me!?! Is A LOT :D It helps more then NO donation ;) I want to really thank Aimee for not only caring, but taking it to he next level to try and do something bigger to help me get healthier! :)
Thank you <3

Love youu!!
Mikey

my post to the mikeywheels facebook group

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i am no bam margera or honey boo-boo.

I have a plan to change the world, to feed the hungry, to inspire the sad, and try and undo all the wrong that's been happening in the world and contribute to this country to be the best citizen that I can. To get people to see things and live life fully. All I have heard for years is people reflecting upon my life via youtube facebook anything!... and then they realize that they don't have very much to complain about.... much like me because there people 3000 times worse than me. I became inspired five years ago and I decided to take that and run with it... well roll lol. Did I ever think that there would be anybody that people would know who my name was or what I was doing keeping up with my life?

NO haha

I am very imperfect, I am very flawed, As happy as I usually am.... Don't cross me haha. There is an ugly side to me as well just as there is every human.
The only person is happy all the time is Cesar Milan... I have no clue how that dog whisperer keeps that smile so perfect lmao And thats on camera lol

The point is I feel calling either from the universe: God, call it the Almighty, Mohammed, Allah... call it whatever you want to... Most people believe in some sort of higher power even if they deny it.. i think. That higher power has told me to do everything that I've ever done ever since birth. I am a rebel WITH a cause. Although there are a lot of things happening right now this particular moment in my life you'll start to see a lot of things happening on this page on my website and in the world in general. Like I said I feel a calling.. And with no ego. I am absolutely honored anybody views me as anything besides another person walking or rolling by. And I am not here for fame for money. It's all about possibility and working that making the world happier place.

I own over 150 domains in which I plan to put in the action as parts of ways that I plan on changing the world. I may work slow but you have to give me a little bit of understanding considering that i am all by myself taking care of myself very little help with very strength, It's hard enough to eat let alone get online and edit and whatnot lol

I wanted to say I love you all everybody who has liked this page and is joining me for whatever reason they are. You all inspire me to keep going in to keep fighting. Passing the medical marijuana law New Jersey three years ago was just the start... And tomorrow 20 patients, the first patients in New Jersey Will finally access Medical marijuana legally.Im proud of myself :) i fought hard!!!! Thanks to all the laws that I broke; after all the interviews and traveling back and forth between New Jersey and California, Becoming friends with a Republican assembly woman, who spoke up personally during the hearing to speak directly about me and how is unacceptable that the law was not passed.

Front page of all the newspapers, the New York Times, national, other publications, everywhere... but The only reason I did any of those things was so the sick people in New Jersey (like i was living there at the time) can access safer medicine, Instead of having to leave to come to California like I did. We sadly lost a friend of ours Diane to ALS. She was one of the main fighters with us. We fought so that others can have relief. Diane never got to see this day happen, It only seems like yesterday we were in the courthouse hugging each other in victory.

Main point is I'm not here for fame ( I'm actually quite self-conscious) I'm here to make a difference if I can.... not because I'm anything special, but just because I feel like it's something that I feel deep deep inside my soul. I'm just like everybody else. And aside from the government trying to starve me to death lol I have nothing to complain about :)

Because no matter what I always find a way :) I am a survivalist, I also have a deep love for everyone. I hope that I can accomplish everything that I want to accomplish in my lifetime.

I just want everybody to know I everyone that likes this page or the follows me on YouTube or anywhere... you truly complete my life. I don't know if I would be as strong without you.

And Lisa, my sister whom i love very much... Lisa, my entire life would not be like this if it wasn't for you... my guide... not to mention you saving my life when i was three.

i love you Lisa, I love you Mikeywheels supporters, and i promise to make a difference and never stop. I believe it was why i was born :)

its all about possibility :)

LOVE YOU!!!
mikey

Being online and being judged

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If you haven't noticed. Sometimes we have to deal with the best people, and the ones who like to have a problem. People don't like that I stand up for myself.

Just because I'm weak and need help all the time doesn't mean I won't tell u when ur being a jerk (when a person is being one). We all have feelings, I should be allowed to express them without being told i need psychological help... Thank you for those kind words Karina.. Projection? No no, expression. Which apparently can only be one sided. And no
I'm not mad at you, I just won't be subject to ur judgement anymore.

Cheers!
:)

Mike

My twitter