im gion to get the talk and type program now. its too hard to keep typing.. :/
Help to save Mikey's life
As you know, Mikey has always been able to smile through the pain, no matter what, until recently. The pain in his stomach is now worse than ever and has led to an inability to eat, causing rapid weight loss. At 6'1", he's a meager 75 lbs and dropping fast. It's getting more difficult for Mikey to smile through the pain and fear.
One of the only places where Mikey can get help is the MAYO clinic in Minnesota. There, a team of specialized doctors will work together to figure out how his illnesses affect each other and can be treated to restore health and balance to his body so he can keep living his incredible life.
All of this obviously comes with a large amount of costs, which can only be covered with the help and donations of as many people as possible – even if it's just a dollar. Please click on one of the two following links to access the crowd funding campaigns that will help Mikey get better. Thank you!
What goes up..
Made my first solo attempt at using the bathroom, which involved breaking he doorway to fit, then figuring out a way to slide on the throne, then i tried to use everything around me to help me back up into my chair... didnt happen this time, but i did get a very large and obnoxious pain in my heart and chest, joy! But its my sisters birthday!!! Happy Birthday dookie!
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Phase II
The Journey Continues.....
This entire part of my life is driven by one moment, followed by another, which led to a series of questions about my life and how i live it and what I feel is a fulfilled life or a wasted one. I had no clue what I was doing when I first made the website, or the facebook group or the video that was originally going to be used as a potential way to get funding with a news network (which never happened). I took it day by day. I bought a camera. I got a mac (thanks to my mom and dad) and I followed through with something that had no certain outcome and what ended up happening was one of the most beautiful things that i didn't think would happen, especially with me being scared, alone and trying to figure out how I wanted to live, and how I wanted to die. When you have to think about how you have to die, it's not always a bad thing...it just so happens to give you an incredible perspective on what's important. I still know nothing about blogging, vlogging and editing or videographer-ing or whatever. I still don't have the ability to respond to every person who has reached out to me since I began this journey, mostly because I don't have the use of my fingers like i wish to. As you are reading this my good friend Adam is typing for me so I can attempt to get across what's on my mind and how sorry I feel about not being able to respond to the people that matter the most to me...which is everyone.
I have never been happier than when I began to follow my heart and set out on this journey. These last two weeks I've spent trying to figure out how my dream of living independently and disabled for more than just a month or two. Social Security is set up so poorly that it traps anyone who needs it for life. It has personally frustrated me since 18 when I needed to be on it (while I was working and making more) just so i could be eligible for DVR who paid $48,000 out of the $101,000 that it cost to produce "the beast" (my van) That van is the vessel for living an independent life.
Most buildings or apartments, including police stations...are NOT fully handicap accessible. There are no handicap parking spaces anywhere on the street making it impossible to park my van. I have received about 10 parking tickets and I've only been here a couple of weeks. I take things one day at a time. If you worry about more than one day, you're worrying about a potential nothing because the only thing that is real is today...right here...right now....wherever that is.
I have been updating the website and will continue to blog and vlog about part two of the journey and how I plan to make it happen, what I plan to do with it , and how I plan to rocks its' world. We are all as powerful as we want to be and can accomplish whatever it is we want, depending on how bad we want it. I say want it.....and want it Soo bad.
Thank you to everyone for supporting me, following me, putting up with me, caring about me or hating on me. (you do nothing but fuel my fire baby) Thank you for being a part of my journey and thank you for letting me feel the most love I've ever felt in 24 years.
Love,
Mike
This entire part of my life is driven by one moment, followed by another, which led to a series of questions about my life and how i live it and what I feel is a fulfilled life or a wasted one. I had no clue what I was doing when I first made the website, or the facebook group or the video that was originally going to be used as a potential way to get funding with a news network (which never happened). I took it day by day. I bought a camera. I got a mac (thanks to my mom and dad) and I followed through with something that had no certain outcome and what ended up happening was one of the most beautiful things that i didn't think would happen, especially with me being scared, alone and trying to figure out how I wanted to live, and how I wanted to die. When you have to think about how you have to die, it's not always a bad thing...it just so happens to give you an incredible perspective on what's important. I still know nothing about blogging, vlogging and editing or videographer-ing or whatever. I still don't have the ability to respond to every person who has reached out to me since I began this journey, mostly because I don't have the use of my fingers like i wish to. As you are reading this my good friend Adam is typing for me so I can attempt to get across what's on my mind and how sorry I feel about not being able to respond to the people that matter the most to me...which is everyone.
I have never been happier than when I began to follow my heart and set out on this journey. These last two weeks I've spent trying to figure out how my dream of living independently and disabled for more than just a month or two. Social Security is set up so poorly that it traps anyone who needs it for life. It has personally frustrated me since 18 when I needed to be on it (while I was working and making more) just so i could be eligible for DVR who paid $48,000 out of the $101,000 that it cost to produce "the beast" (my van) That van is the vessel for living an independent life.
Most buildings or apartments, including police stations...are NOT fully handicap accessible. There are no handicap parking spaces anywhere on the street making it impossible to park my van. I have received about 10 parking tickets and I've only been here a couple of weeks. I take things one day at a time. If you worry about more than one day, you're worrying about a potential nothing because the only thing that is real is today...right here...right now....wherever that is.
I have been updating the website and will continue to blog and vlog about part two of the journey and how I plan to make it happen, what I plan to do with it , and how I plan to rocks its' world. We are all as powerful as we want to be and can accomplish whatever it is we want, depending on how bad we want it. I say want it.....and want it Soo bad.
Thank you to everyone for supporting me, following me, putting up with me, caring about me or hating on me. (you do nothing but fuel my fire baby) Thank you for being a part of my journey and thank you for letting me feel the most love I've ever felt in 24 years.
Love,
Mike
Internet is being wierd, probably because its, shared. :-O Can't upload video, and my hands are really tight and not exactly letting me type well. So many things to consider, so many options. I wish to write more but i feel ill and probably need to sleep, eat, and try and do a body good, i already quit smoking for new years, ya know, the resolution thing. So Yeah, swish on that haha but till tomorrow when i can move my fingers more and maybe get solid internet and the dragon speak software so i can talk to type, then i can email the amazing people that have reached out over youtube, email, the website and from everywhere. I still am in awe and bask in a feeling of love like i never felt before. Its pretty incredible. As rough as things may look, life still couldn't be any sweeter, every day is still the best day of my life. Simply because im alive, and there is love everywhere and all around
A lil female company would never hurt tho ;)
but untill then.....haha yea right, im gonna take my pills, start writing my helper monkey application, and dream dream dream, if i make it lol
oh yeah i said it, im gonna get me a monkey, to give a brotha a hand and keep my crippled butt company!!!
love
mikey
A lil female company would never hurt tho ;)
but untill then.....haha yea right, im gonna take my pills, start writing my helper monkey application, and dream dream dream, if i make it lol
oh yeah i said it, im gonna get me a monkey, to give a brotha a hand and keep my crippled butt company!!!
love
mikey
Not enough time in the world
I wish i had a device to stop time so i can do everything that's beautiful, everything. Living solo will take some getting used to. I learned how much longer everything takes. Cripples move slow, but they move!
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Lovin is What i Got
I am so sorry my bloggs have not been exactly yo to date, lots has been happening in the last week, ive been planting my roots and trying to figure out how to survive solo in cali, a great friend wrote an article for a newspaper, his words are more than appreciated. For anyone who would like to read it, its gonna be at this address:
The Mikey Wheels Article Written By Tom Clancey
He is an amazing guitarist, great person, and a great friend. and Im very lucky to have become friends with him through life's beautiful grapevine. So thank you Tom Clancey once more for being such a great guy. Much love my man, we'll Jam hopefully sooner than later!!
I'll be updating more soon, things have been kinda crazy with getting situated, i have some beautiful footage from new mexico and my next entry will hopefully be from my very own first place ever!! my social security will barely cover the rent, but I can get food stamps thanks to the California State Health insurance!! i think... so i think between social security and food stamps, i might be stayin alive, just like the Bee-Gee's minus the hair.... Then come the issue of medication (not exactlty covered by any health insurance) which is killer expensive, and cell phone (life line...literally) and all other life expenses (they never end hahaha). That's the hardest part about being disabled, affording all the medication and equipment, in my opinion at least. It seems that anything thats needed for health, is 10x the price, not so convenient when ya need those things to live haha ce la vie, thats business for you. If they need it, make it crazy expensive so they can't afford to have it. I get why, its just unfortunate. BUT you can't change anything or anyone... all you can do is accept and adapt.
Thank you all for you continual support and for keeping up. I try my hardest to get on as much as i can and update the site. Things will get a little easier when i actually move in and have less chaos running my life hahaha thank you for your patience and Love, i dont take it for granted.
And Thank you John Arrowsmith, he got the article online somehow, im no good with any of that stuff haha, he is another Great Man im fortunate to have in my life. He is the man who put together the First video on the site out of the kindess of his Heart. Thanks John, your kindness to me for all these months means so much to me, you have helped me so much to help me live my dream. I can't thank you enough.
Much love
Mikey
The Mikey Wheels Article Written By Tom Clancey
He is an amazing guitarist, great person, and a great friend. and Im very lucky to have become friends with him through life's beautiful grapevine. So thank you Tom Clancey once more for being such a great guy. Much love my man, we'll Jam hopefully sooner than later!!
I'll be updating more soon, things have been kinda crazy with getting situated, i have some beautiful footage from new mexico and my next entry will hopefully be from my very own first place ever!! my social security will barely cover the rent, but I can get food stamps thanks to the California State Health insurance!! i think... so i think between social security and food stamps, i might be stayin alive, just like the Bee-Gee's minus the hair.... Then come the issue of medication (not exactlty covered by any health insurance) which is killer expensive, and cell phone (life line...literally) and all other life expenses (they never end hahaha). That's the hardest part about being disabled, affording all the medication and equipment, in my opinion at least. It seems that anything thats needed for health, is 10x the price, not so convenient when ya need those things to live haha ce la vie, thats business for you. If they need it, make it crazy expensive so they can't afford to have it. I get why, its just unfortunate. BUT you can't change anything or anyone... all you can do is accept and adapt.
Thank you all for you continual support and for keeping up. I try my hardest to get on as much as i can and update the site. Things will get a little easier when i actually move in and have less chaos running my life hahaha thank you for your patience and Love, i dont take it for granted.
And Thank you John Arrowsmith, he got the article online somehow, im no good with any of that stuff haha, he is another Great Man im fortunate to have in my life. He is the man who put together the First video on the site out of the kindess of his Heart. Thanks John, your kindness to me for all these months means so much to me, you have helped me so much to help me live my dream. I can't thank you enough.
Much love
Mikey
